top of page



Mar 18, 2023
Roasted Beef and Potatoes with Middle Eastern Spices
A refreshing twist on the classic roast beef dish we know and love, this version incorporates an aromatic medley of Middle Eastern...


Mar 14, 2023
Genetic Testing
Genetic Testing can be a tricky and difficult task for us zebras. The hEDS genetic markers, for example, are not known and therefor can't...


Mar 14, 2023
Essential Oils and Ehlers-Danlos Syndrome
Essential Oils, the topic that might be one of the biggest struggles. Paramedics mostly joke about essential oils, and there are plenty...
Mar 14, 2023
When my zebra shows up at work!
These "funny" memories still make me giggle at times, resulting from situations where I primarily didn't manage my EDS/POTS as I should...
Mar 13, 2023
Keto & Ehlers-Danlos Syndrome
Besides a nice weight loss benefit, I do very well on Keto regarding inflammation and pain. I also notice a significant decrease in the...


Mar 13, 2023
Anti-Inflammatory Middle Eastern Ground Beef Bowl (Low-Carb & Keto)
I adapted these Middle Eastern Ground Beef Bowls from a great recipe on Kalyn's Kitchen. They are flavorful with Baharat Seasoning and...
Mar 13, 2023
Ehlers-Danlos Syndrome Diet and Recipes, calling them the Zebra Recipes!
I will start this category by adding some cooking recipes! Mainly because I like cooking. There is nothing special or dedicated to these...
Mar 10, 2023
Magnesium & Ehlers-Danlos Syndrome
It is crucial for individuals with EDS to recognize the signs and symptoms of magnesium deficiency and learn how to prevent and address...
Mar 9, 2023
Braces & Splints & Ehlers-Danlos Syndrome
I often get asked what kind of braces I prefer. I have one brand that I like best. It’s the Bauerfeind brand. They have a soft woven knit...
Mar 8, 2023
The competition!
I now have an avatar of a zebra dressed as a medic! Two very talented young ladies decided to do a competition drawing a zebra medic for...
Mar 7, 2023
Pictures of Ehlers-Danlos Syndrom or seeing is believing????
Warning: This post contains images of an actual tendon taken during surgery! If we see a reason for pain, we can believe the pain –...
Mar 6, 2023
The guilt of feeling pain and problem of treatments!
Any hEDS patient can relate to the difficulties of chronic pain; besides the physical limitation, there is the mental. At least for me!...
Mar 6, 2023
4 am, ankle pain and questioning my ideas….
Good morning, it's 4 am, 4:53 am to be exact. Not that it really matters, I'm awake since 4 am. Which is actually better than last night...
Mar 2, 2023
Post with a cliffhanger!
I just finished a fantastic zoom meeting with a researcher I found through clinicaltrials.gov. I am not sharing his name now as I am...
Mar 1, 2023
hEDS Diagnostic Checklist
This is a hEDS diagnostic checklist provided by the Ehlers-Danlos Society. “HEDS Diagnostic Checklist.” The Ehlers-Danlos Society, The...
Feb 28, 2023
A thought in regards Amazon links ...
As some of you may know, there is a program called Amazon Associates that many websites, bloggers, and others use. While I am generally...


Feb 28, 2023
My encounters with EDS in EMS
Ehlers-Danlos Syndrome is considered a rare disease. In the EDS community, there is the common belief it is more prevalent than thought,...


Feb 28, 2023
Unstoppable by SIA .... you may wonder why?
Did you know singer / songwriter SIA is diagnosed with Ehlers-Danlos Syndrome? Read the following lyrics, I think every Zebra can relate....
Feb 28, 2023
Sleepless nights ….
It’s past 1 am …. And I can’t sleep. Probably many of you with EDS can relate. My ankles hurt. This strange pressure pain which feels...


Feb 27, 2023
A non-EDS excerpt from my life ….
A few days ago, I bought a galaxy projector for my bedroom in hopes I sleep better or prefer to stay in the bedroom instead of on the...
bottom of page