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May Awareness – Walk & Roll Challenge
I am participating in the May Awareness - Walk & Roll Challenge for the Ehlers-Danlos Society! I will commit to walking 1000 steps for...
Apr 19, 2023


Earning scholarships!!!
Starting May I will be going to college fulltime to finish my degree in Psychology faster than I have been doing with evening and online...
Apr 17, 2023
EDS & exhaustion
Well, first off, apologies for not posting lately. Our trip to Germany was great, but it wiped my body out. I feel like I'm just recently...
Apr 16, 2023


Update
I am writing this blog post to apologize for the lack of new posts in recent days. I understand that many of you rely on this blog for...
Apr 6, 2023


Sightseeing with a Mast Cell Reaction (?) after eye irritation...
Friday, we went to a pool. I always went to the pool in contact lenses, and so did I on Friday. Bad idea; I developed a "swimmer's eye."...
Mar 25, 2023


A long flight and new food!
Yesterday morning, I arrived in Germany after being away from home for 4.5 years. The flight wasn't too terrible, though I experienced...
Mar 23, 2023


Orthopedics Update
I had an appointment with an orthopedic specialist for my ankle problems today after a gap of 10 years. The staff there was kind and...
Mar 21, 2023


One issue of being a paramedic!
Hello and good morning! I'd like to discuss just one of the numerous issues present in our emergency medical system. You might argue that...
Mar 21, 2023


Reiki
Reiki is a topic that has caused conflicts for me between my personal experiences, teachings, and scientific understanding. Although I...
Mar 20, 2023


American Airlines initially refuses to accommodate disability!!!
I recently contacted American Airlines to request a disability accommodation for my upcoming trip. I explained my situation and offered...
Mar 20, 2023


Foods That Fight Inflammation
Food has always played a significant role in both my life and health. Since childhood, I had an aversion to certain foods that later...
Mar 19, 2023


Roasted Beef and Potatoes with Middle Eastern Spices
A refreshing twist on the classic roast beef dish we know and love, this version incorporates an aromatic medley of Middle Eastern...
Mar 18, 2023


Genetic Testing
Genetic Testing can be a tricky and difficult task for us zebras. The hEDS genetic markers, for example, are not known and therefor can't...
Mar 14, 2023


Essential Oils and Ehlers-Danlos Syndrome
Essential Oils, the topic that might be one of the biggest struggles. Paramedics mostly joke about essential oils, and there are plenty...
Mar 14, 2023
When my zebra shows up at work!
These "funny" memories still make me giggle at times, resulting from situations where I primarily didn't manage my EDS/POTS as I should...
Mar 14, 2023
Keto & Ehlers-Danlos Syndrome
Besides a nice weight loss benefit, I do very well on Keto regarding inflammation and pain. I also notice a significant decrease in the...
Mar 13, 2023


Anti-Inflammatory Middle Eastern Ground Beef Bowl (Low-Carb & Keto)
I adapted these Middle Eastern Ground Beef Bowls from a great recipe on Kalyn's Kitchen. They are flavorful with Baharat Seasoning and...
Mar 13, 2023
Ehlers-Danlos Syndrome Diet and Recipes, calling them the Zebra Recipes!
I will start this category by adding some cooking recipes! Mainly because I like cooking. There is nothing special or dedicated to these...
Mar 13, 2023
Magnesium & Ehlers-Danlos Syndrome
It is crucial for individuals with EDS to recognize the signs and symptoms of magnesium deficiency and learn how to prevent and address...
Mar 10, 2023
Braces & Splints & Ehlers-Danlos Syndrome
I often get asked what kind of braces I prefer. I have one brand that I like best. It’s the Bauerfeind brand. They have a soft woven knit...
Mar 9, 2023
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