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Mar 14, 2023
Genetic Testing
Genetic Testing can be a tricky and difficult task for us zebras. The hEDS genetic markers, for example, are not known and therefor can't...
Mar 10, 2023
Magnesium & Ehlers-Danlos Syndrome
It is crucial for individuals with EDS to recognize the signs and symptoms of magnesium deficiency and learn how to prevent and address...
Mar 9, 2023
Braces & Splints & Ehlers-Danlos Syndrome
I often get asked what kind of braces I prefer. I have one brand that I like best. It’s the Bauerfeind brand. They have a soft woven knit...
Mar 1, 2023
hEDS Diagnostic Checklist
This is a hEDS diagnostic checklist provided by the Ehlers-Danlos Society. “HEDS Diagnostic Checklist.” The Ehlers-Danlos Society, The...
Feb 22, 2023
Feb 22, 2023
Medical Alert Bracelet - yes or no?
The issue with having a medical alert bracelet, in the case of Ehlers-Danlos Syndrome. The idea of having one is great, but I do not wear...
Feb 18, 2023
What is Ehlers-Danlos Syndrome?
According to The Ehlers Danlos Society: The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The...
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