If you’ve ever struggled to get an official diagnosis for hypermobile Ehlers-Danlos Syndrome (hEDS), you’re not alone. Patients often...

Living with chronic pain—whether from a rare disease, an injury, or an invisible illness—can take a serious toll. It doesn’t just affect...

Chronic pain is often seen as a purely physical condition, but research shows that psychological and social factors play a critical role...

There are laws in place to protect people from having to disclose their medical conditions. They exist for a reason—to prevent bias,...

For individuals living with chronic pain, finding effective relief can feel like navigating an endless maze of treatments with little...

Living with a rare disease is a unique journey, often marked by physical, emotional, and social challenges. For many of us, the pressure...

For four weeks, I dealt with relentless nosebleeds—bad ones every other day. Yet, I avoided the doctor. Why? Because living with...

Living with Ehlers-Danlos Syndrome (EDS) often means navigating the challenges of joint hypermobility, chronic pain, and fatigue....

The ZebraMedic’s Holiday Adventure ‘Twas the night before Christmas, and all through the savanna, not a creature was stirring—except for...

Introduction Proprioception, the body's ability to sense its position and movement in space, is a fundamental component of human motor...

Emotional and Psychological Challenges Living with EDS can lead to feelings of frustration, isolation, and anxiety. The chronic pain and...

When you live with an invisible or rare disease, your struggles often go unseen and misunderstood. The world operates on what it can see...

I’m at a point in my life where I am actively looking for a role that matches my skills, education, and certifications—but the struggle...

Thought I share another aspect about living with a rare disorder! We often travel for care! Yesterday I had to travel 2.5 hours one way...

Refining my approach to managing MCAS has become a deeply personal journey. Following consultations with medical professionals,...

Hey everyone, it's been a while since I last shared an update. I recently made a move from Missouri to South Carolina, securing a...

I will be relocating to South Carolina! The climate is much better there! Also, my dog agrees, he has less arthritis problems!!! Keeping...

Years ago I discovered livewello and I love it. Livewello is a web-based platform that provides tools for analyzing and interpreting...

Did you know that while some disabilities are evident to onlookers, others remain concealed and are often described by those in the know...

Bend or Break is an award-winning documentary based on the memoir of Mitch Martow. The story begins with a 14-year-old boy's struggle...