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Paramedics Aren’t Heroes—They’re Antiheroes
(Hint: Replace “paramedic” with firefighter, police, first responders, or ER nurse. The antihero energy still fits.) They called us...
Jul 20


Luna’s Official Travel Blog: “Service Dog on Duty… and Slightly Judgy” 🛫🐾
Episode 43: Operation Fly-Me-To-SC Greetings, hoomans and fur-iends! It’s me, Luna, your favorite tiny-but-mighty service dog with a PhD...
Jul 8


🛠️ Process Improvement for the Disabled / Lean thinking on wheels—dog included, chaos excluded.
Ever wondered what happens when you mix mobility aids, luggage, a determined traveler (aka “broken” paramedic), and a Chihuahua—with a...
Jul 1


Yes, I Can Walk. Yes, I Need the Chair. No, I Won’t Explain Either.
Let’s get one thing out of the way: If you see me stand up from my wheelchair and your jaw hits the floor like I just staged a...
Jun 28
💥 Deadpool, Wolverine, and EDS
Why This Mutant Mess Feels a Little Too Relatable I walked into Deadpool & Wolverine expecting chaos, sarcasm, and regenerating body...
Jun 27
“I’d Rather Be Dead Than Live Like This”
…and no, that doesn’t mean I’m suicidal! There’s something many of us with Ehlers-Danlos Syndrome (EDS) feel but rarely say out loud:...
Jun 26


More Than Just MTHFR: Why We Need to Look at the Whole Picture
For years, I was told that my symptoms were either unrelated, psychosomatic, or just bad luck. When genetic testing finally revealed that...
Jun 25


When the System Is Rigged, Everyone Loses
I often share personal moments of frustration—not because I’m looking for sympathy, but because I’ve lived long enough in a broken...
May 12
When Pain Makes You the Villain: The Unspoken Cost of Chronic Illness
The past couple of days, I experienced one of the worst episodes I’ve had in a long time. The pain from my cranio-cervical instability...
May 12


Why Are Doctors Still Refusing to Diagnose Ehlers-Danlos Syndrome?
If you’ve ever struggled to get an official diagnosis for hypermobile Ehlers-Danlos Syndrome (hEDS), you’re not alone. Patients often...
Mar 10


When Life Feels Impossible: Small Wins for Chronic Pain and Mental Health
Living with chronic pain—whether from a rare disease, an injury, or an invisible illness—can take a serious toll. It doesn’t just affect...
Feb 21


The Hidden Battle: How Psychosocial Factors and Functional Impacts Shape Chronic Pain
Chronic pain is often seen as a purely physical condition, but research shows that psychological and social factors play a critical role...
Feb 7


When Advocacy Meets Reality: The Hard Truth About Disclosure
There are laws in place to protect people from having to disclose their medical conditions. They exist for a reason—to prevent bias,...
Jan 31


Ketamine Infusion Therapy: A Breakthrough for Chronic Pain Management
For individuals living with chronic pain, finding effective relief can feel like navigating an endless maze of treatments with little...
Jan 13


Breaking the Mold: How Conformity Impacts Life with a Rare Disease
Living with a rare disease is a unique journey, often marked by physical, emotional, and social challenges. For many of us, the pressure...
Jan 12


Avoiding the Doctor: Living with EDS and the Fear of Judgment
For four weeks, I dealt with relentless nosebleeds—bad ones every other day. Yet, I avoided the doctor. Why? Because living with...
Dec 30, 2024


Aerial Yoga: A Potential Ally for Ehlers-Danlos Syndrome (EDS) Management
Living with Ehlers-Danlos Syndrome (EDS) often means navigating the challenges of joint hypermobility, chronic pain, and fatigue....
Dec 26, 2024


Merry Christmas
The ZebraMedic’s Holiday Adventure ‘Twas the night before Christmas, and all through the savanna, not a creature was stirring—except for...
Dec 25, 2024
Effects on Motor Control and Balance in Ehlers-Danlos Syndrome and Substance Influence: Systematic Review
Introduction Proprioception, the body's ability to sense its position and movement in space, is a fundamental component of human motor...
Dec 22, 2024
The Psychosocial Impact of Living with Ehlers-Danlos Syndrome
Emotional and Psychological Challenges Living with EDS can lead to feelings of frustration, isolation, and anxiety. The chronic pain and...
Nov 27, 2024
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