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Keto & Ehlers-Danlos Syndrome

Writer's picture: Jessy Jessy

Besides a nice weight loss benefit, I do very well on Keto regarding inflammation and pain. I also notice a significant decrease in the instability aspect of my joints and a decrease in subluxations. My eosinophils level (inflammatory marker) in blood work is usually over 1200 cells/microL. The normal range is 0-500 cells/microL. If I do the Keto diet consistently, my eosinophil levels return to normal values. My body overall also has more energy and less fatigue associated with EDS.


A sad downfall, in my case, is that I notice staying on this diet for several months, my estrogen seems to get raised, and I start to have issues with estrogen dominance. I mostly do strict keto for a few weeks and avoid certain carbs and ingredients the rest of the time. This seems to work very well for me. I continue to research aspects of fixing the estrogen issue, so I can keep doing Keto all the time. My body feels best in a ketosis state. An added problem is that I haven't found any medical professional around here to manage estrogen issues in Zebras or patients with other co-morbidities.


Key to a successful Keto Diet is, in my experience, a strict way of tracking your net carbs and ketone/glucose levels. It sounds complicated, but it is not at all. It may take a little getting used to it, but it's super easy once you get your routine. I track my net carbs with a diet tracker app. The Ketone and Glucose I measure with a Keto Meter.

I don't feel the diet is restrictive when done correctly. If I want to drink a glass of wine or beer, I make sure I plan my net carb intake correctly for the day. Measuring your ketone/glucose levels also teaches you how you respond to certain foods and carbs, and you learn how much net carbs you need to remain in ketosis. I also noticed that my body can quickly return to ketosis if I happen to kick myself out of it.


Another great aspect of Keto: I don't have any food cravings; I can walk by a jar of gummy bears or chocolate without the urge to eat them. Everyone who knows me, if I'm not in a ketosis state, I'm eating ice cream for breakfast. No kidding!


Also, my ADHD is way less severe in a ketosis state. If it wouldn't be for that stupid estrogen issue, I'd always be in ketosis. If you happen to know a solution, please, please tell me about it.

For additional information on how the ketogenic diet reduces inflammation, please visit Keto Mojo. I have learned so much about Keto Diet from this website. Keto Mojo also made the Keto Meters I have been using for years (I bought an upgrade when they came out with the new one). Last year I was lucky enough and had an FSA/HSA and could use it for the new meter and strips.


Since I really love Keto Mojo (the meters, their app integration to other apps and apple health, and others, their website information, and so on), I signed up to become one of their affiliates (something gotta pay for this website, I realize, lol). If you want to try the Keto Diet for yourself, please consider supporting me by using my link, and as always, feel free to message me with any questions.




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