Who is The Zebra Medic®?

Meet Jessy, a highly experienced paramedic with over 20 years of experience in both Germany and the USA. Diagnosed with Ehlers-Danlos Syndrome, a rare connective tissue disorder, she combines her medical expertise with personal insights to advocate for patients with rare diseases.

Jessy currently works as a patient advocate at a clinic specializing in Ehlers-Danlos Syndrome and related conditions. She is also a writer and co-author, with ongoing work including both academic publications and a forthcoming book.

She is pursuing her Master’s in Industrial-Organizational Psychology, with graduation expected in October 2025, and plans to continue on to a PhD in Social Psychology to explore the intersection of psychosocial factors and experiences with rare diseases. Jessy is a CITI-certified research professional and holds a Bachelor of Arts in Psychology with a minor in Sociology.

Through her blog, Jessy shares her unique perspective, providing resources, insights, and support for individuals and families affected by rare conditions.

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Credentials & Certifications:

• Bachelor of Arts (BA) in Psychology, Minor in Sociology

• CITI-Certified in Human Research

• Nationally Registered Paramedic (NRP)​​​​

• SHINPIDEN Reiki Master & Teacher

• EURORDIS International Advocate for Rare Diseases

• Certified Health & Wellness Coach

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Publications: 

Navigating the Psychosocial Landscape of Ehlers-Danlos Syndrome: An Autobiographic Case Study

Status: Accepted for publication in Discover Mental Health (Springer Nature)

 

Bubble-Wrap & Battle Plans: Notes from a Medically Fragile Badass

Status: In progress — a bold, personal exploration of living with Ehlers-Danlos Syndrome, told with grit, humor, and unfiltered honesty.

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