I now have an avatar of a zebra dressed as a medic! Two very talented young ladies decided to do a competition drawing a zebra medic for...

Warning: This post contains images of an actual tendon taken during surgery! If we see a reason for pain, we can believe the pain –...

Any hEDS patient can relate to the difficulties of chronic pain; besides the physical limitation, there is the mental. At least for me!...

Good morning, it's 4 am, 4:53 am to be exact. Not that it really matters, I'm awake since 4 am. Which is actually better than last night...

I just finished a fantastic zoom meeting with a researcher I found through clinicaltrials.gov. I am not sharing his name now as I am...

This is a hEDS diagnostic checklist provided by the Ehlers-Danlos Society. “HEDS Diagnostic Checklist.” The Ehlers-Danlos Society, The...

As some of you may know, there is a program called Amazon Associates that many websites, bloggers, and others use. While I am generally...

Ehlers-Danlos Syndrome is considered a rare disease. In the EDS community, there is the common belief it is more prevalent than thought,...

Did you know singer / songwriter SIA is diagnosed with Ehlers-Danlos Syndrome? Read the following lyrics, I think every Zebra can relate....

It’s past 1 am …. And I can’t sleep. Probably many of you with EDS can relate. My ankles hurt. This strange pressure pain which feels...

A few days ago, I bought a galaxy projector for my bedroom in hopes I sleep better or prefer to stay in the bedroom instead of on the...

The issue with having a medical alert bracelet, in the case of Ehlers-Danlos Syndrome. The idea of having one is great, but I do not wear...

According to The Ehlers Danlos Society: The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The...

The first day of skiing went great!!! I DID NOT get run over by a snowboarder this time!!! 2 essential things I learned compared to last...

Road trip time ….. here I am sitting in the car, not really a good way to be comfy with your legs; anyone with Hypermobility can relate,...

Well, where to start? I'm Jessy, and the main reason I start this is to stop giving my friends an earful about my struggles. You may...