Medical Alert Bracelet - yes or no?

The issue with having a medical alert bracelet, in the case of Ehlers-Danlos Syndrome. The idea of having one is great, but I do not wear one. The reality is most paramedics never even heard of Ehlers-Danlos Syndrome, and most ER docs, if they have heard of it, have no clue about it either. Besides that, if you tell any medical professional your “journey” and symptoms of EDS, they think you are a nutcase anyways.

Research is ever-changing, and discoveries are made, thankfully. But unless you are involved with EDS, you won’t find out about them.

From childhood, anesthesia has never worked properly on me, nor have most other medications. Anesthesiologists ask you the “fancy” questions if you ever had any issues with anesthesia in the past, and they don’t believe you anyways, at least in my case.

2017 I got a pharmacology DNA test done, and now I have a list of how I metabolize medications. But it was not until at least 2021 doctors appreciated this test and started to consider it when prescribing me any new meds.

Even if I had myself as a patient in the ambulance, knowing I’m an ultra-rapid metabolizer or poor metabolizer for certain drugs, I would not be able to change my medication dosages. I have to follow my protocols, which are made for horses, not zebras. Someone could argue that I could call med control. Yes, that’s true, but what are the chances that I speak to ED doc knowledge and be comfortable enough to adjust orders? The chances are pretty slim. So why even bother wearing a bracelet?