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Bunionectomy with Ehlers-Danlos Syndrome / Surgery

Writer's picture: Jessy Jessy

Good morning my friends!


I finally had the bunionectomy on my left foot yesterday. For the first time, the physicians actually believed my previous anesthesia and mast cell activation-related issues of earlier surgeries. I am pretty impressed.


Needless to say, I had a much better experience, this time!


They agreed not to do a peripheral nerve block as the past 2 I had only caused me pain but didn't work due. As you probably know, local anesthesia isn't very effective for people with EDS.


The procedure was quite complex, I think since they did 3 different things, and I have some plates and screws now where my first metatarsal kept dislocating (mid-foot). I will describe those procedures in a later post after I find proper sources for them.


From previous surgeries, I learned that a cast triggers mast cell-activated swelling, so this time, I only have a CAM boot, which is nice as I can remove it and ice my foot very well with the ice-cooling machine they gave me. This thing is incredible!


Another aspect I learned from previous surgeries is: Stay on top of pain management!!!! Don't wait for the pain to come back or kick in; chasing pain is hard! I set a timer and tracker on my phone and take my medicines when it's time, not waiting to see if I get pain as I've done before! I have to say, so far, the pain isn't terrible!


I am keeping you all posted!

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